We really have no idea what each day will bring, how it will start, or how it will end. Today was a perfect example.
Because today, my boy was FULL of energy. Both he and Eloise were running around the house most of the day, full of laughter and so much energy! The blood transfusion that he received yesterday did wonders for his energy level and it was a delight to see. So, when the nurse called me at 5:00pm tonight to let me know that we needed to be admitted to the hospital tonight, it was slightly surprising.
Any time we go to the hospital for a fever, it is routine to take blood cultures to see if any bacteria grows over 24-48-and 72 hours. When we went to the ER on Friday night because of a fever, they took cultures and today they came back positive for some kind of bacteria. They are not quite certain what type of bacteria yet, but because he is neutropenic with bacteria in his blood, we had to be admitted to start IV antibiotics.
So, we're here at the hospital now. My exuberant boy was pretty thrilled about getting a chance to sleep in his "special bed" and is now fast asleep. He was due to have a final dose of a round of oral chemo tonight, but his docs decided to hold off since there is the possibility of infection, and wait until his team makes a decision about treatment tomorrow.
He is still scheduled to have his first round of radiation tomorrow morning, bright and early at 7:30am. He was also scheduled for intrathecal chemo and 2 other IV chemos tomorrow, but we will have to see what his team decides to do once they meet tomorrow. I will keep you posted.
And for those of you who contributed to what is a humbling and exciting first day of our Team Ethan t-shirt campaign - thank you so much! I am genuinely excited at the idea of so many people around the country wearing Team Ethan t-shirts - it really is a way of showing how much of a team we have around us. Thank you so very much.
We will keep you posted on tomorrow's events. For now, please pray that whatever this bacteria is - that it will be killed quickly by the antibiotics and that his first radiation treatment and sedation goes smoothly in the morning.
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